Description:
In this episode- it's Bleeding Disorders Awareness Month! Patrick and Natalie discuss that, Washington Days, the landmark opening of the My Life, Our Future research repository, and more! Also, Australian community member Jenna Lovell gives her take on life w/ vWD, and Mainer Justin Levesque discusses photography, hemophilia, Iceland, and much more during a wide-ranging Sit-Down conversation with Patrick. All this and more on Episode 10 of The BloodStream Podcast!
Sponsors for Episode 10:
Presenting Sponsor: Stop The Bleeding! (STB!) Link to STB! Website
Supporting Sponsor: Shire Link to BleedingDisorders.com
Trending Topics:
EMA Names Investigational Gene Therapy, BMN 270, a Priority Medicine for Hemophilia A (Link)
FDA Gives Breakthrough Designation to Hemophilia Gene Therapy (Link)
Daily Infusion of Low-dose Factor VIII Found to Benefit Some Hemophilia A Patients (Link)
LA Kelley Launches a New Edition of Raising a Child With Hemophilia (Link) Learn more about all of LA Kelley’s offerings (Link)
Bioverativ Officially Spins-Off of Biogen’s Hemophilia Business (Link)
HFA 2017 Policy & Government Relations Internship (Link)
New and Improved Blood Brotherhood Forum from HFA (Link)
Bioverativ Officially Spins-Off of Biogen’s Hemophilia Business (Link)
Like Share Comment:
Like: What is cryotherapy and is it effective/safe for people with chronic pain and/or joint problems? Link to Article.
Share: A community Mom shares her story on addiction, family, and bleeding disorders. Link to Article from HFA: Opioids, Addiction, & Bleeding Disorders (Jan 2016).
Comment: Advocacy, Washington Days, and how to advocate an advocate community member: Link to Article from NHF: How to Advocate to Protect Access to Health Insurance. Link to NHF’s Share Your Story Campaign
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