Info

BloodStream

A monthly, 360-degree look at the bleeding disorders community, complete with news, interviews, and informed opinionating. Hosted by Patrick James Lynch. Produced by Believe Limited.
RSS Feed
BloodStream
2019
September
August
July
June
May
April
March
February
January


2018
December
November
October
September
August
July
June
May
April
March
February
January


2017
December
November
October
September
August
July
June
May
April
March
February
January


2016
December
November
October
September
August
July
June


Categories

All Episodes
Archives
Categories
Now displaying: Category: general
Sep 16, 2019

NHF’s 71st Bleeding Disorders Conference (BDC) is just weeks away, the stress of back-to-school season is in full effect, and might Tai Chi be, “An Ancient Remedy for Modern Times” that we all need?  Rick Starks says so! Nutrition consultant student Delisa O’Brien and Hong Kong-based singer/songwriter Kashy Keegan join the pod to talk about Sickle Cell Disease (SCD) and Charcot-Marie Tooth Disease (CMT), as September is an awareness month for both, and Spark Therapeutic Co-Founder & President Dr. Katherine High joins us to discuss her journey in gene therapy and the launch of TheScienceFair.org!  Plus, A Moment for Mental Health with Debbie and streaming recommendations from Mama Sue. All that, and more, on Episode 40 of The BloodStream Podcast.

 

Presenting Sponsor: 

Takeda: http://bleedingdisorders.com

 

Segment Sponsors:

Like Segment made possible by Genentech: https://www.youtube.com/challengeacceptedshow

Share Segment made possible by Sanofi-Genzyme: https://www.juneforjointhealth.org/

 

Like Segment:

How Stress Hits Women’s Brains Harder, from Prevention.com

 

Share Segment:

Rick Starks’ An Ancient Remedy for Modern Times

 

Comment Segment:

Sickle Cell Awareness Month

CMT Awareness Month

Kashy Keegan - The Best Is Yet To Come

 

A Moment For Mental Health Segment:

National Suicide Prevention Hotline:  800-273-TALK

Crisis Text Line:   Text CONNECT to 741741

Trevor Hotline:   866-488-7386

American Foundation of Suicide Prevention: www.afsp.org

Debbie de la Riva’s Website

Mental Health Matters Too Resource Guide

Take a free of charge, private mental health screening here: https://www.mhanational.org/

 

Mama Sue’s Netflix Recs:

Sharkwater Extinction

Diagnosis

Starbucks Unfiltered

 

Parting Shots:

Believe @ NHF 2019: http://believeltd.com/nhf2019 + https://events.hemophilia.org/ehome/bleedingdisordersconference/program-at-a-glance/

 

Save One Life: https://saveonelife.net/

 

Subscribe and rate: The BloodStream Podcast on iTunes

Listen to the latest: Ask The Expert Podcast

Stop The Bleeding!: stbhemo.com

Teen Impact Awards: teenimpactawards.com

BloodFeed: www.bloodfeed.com

The Science Fair: thesciencefair.org

Bombardier Blood: bombardierblood.com

 

Connect with BloodStream Media:

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream on Facebook

BloodStream on Twitter

 

Subscribe to BloodStream:

iTunes: http://bit.ly/bloodstreamitunes

Stitcher: http://bit.ly/bloodstreamstitcher

LibSyn: http://bit.ly/bloodstreamlibsyn

SoundCloud: http://bit.ly/bloodstreamSC

TuneIn: http://bit.ly/bloodstreamtunein

Google Play: http://bit.ly/bloodstreamPlay

Spotify: http://spoti.fi/2nNPhui

Aug 18, 2019

Is gun control a healthcare issue?  Why is CBD everywhere? What new assistive device did Patrick buy?  We discuss it all, plus, Association for Healthcare Social Media Founder and President Dr. Austin Chiang joins to discuss his mission, Debbie de la Riva’s back to talk about National Suicide Prevention Month, and Mama Sue helps us wind down with her latest streaming recommendations. All that, plus a community share from Meredith Meyers- and so much more- on Episode 39 of The BloodStream Podcast.

 

Presenting Sponsor: 

Takeda.  Visit http://bleedingdisorders.com to learn more.

 

Segment Sponsors

“Like Segment” made possible by Genentech:

https://www.youtube.com/challengeacceptedshow

 

Subscribe and rate The BloodStream Podcast in Apple Podcasts

 

Listen to latest Ask The Expert Podcast

 

Show Notes

Housekeeping

BloodStream Media: bloodstreammedia.com

Stop The Bleeding!: stbhemo.com

The Science Fair: thesciencefair.org

 

Like Segment

What’s the Deal with CBD Oil?

 

Share Segment

Meredith Meyers’s First of His Kind 



Comment Segment

Is Gun Control A Health Care Issue?

 

A Moment For Mental Health Segment

 

National Suicide Prevention Hotline:  800-273-TALK

Crisis Text Line:   Text CONNECT to 741741

Trevor Hotline:   866-488-7386

American Foundation of Suicide Prevention: www.afsp.org

Debbie de la Riva’s Website

Mental Health Matters Too Resource Guide

 

Interview Segment w/ Dr. Austin Chiang

Association for Healthcare Social Media

 

Mama Sue’s Netflix Recs

In The Dark

Father Brown

Is Sugar The New Fat?

 

Parting Shots

Two women in Chicago are naming all the generic drugs

Whistler, Canada

 

Connect with BloodStream Media

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream on Facebook

BloodStream on Twitter

Jul 14, 2019

This month on The BloodStream Podcast host Natalie infuses host/husband Patrick for the first time, on mic (and video)!  Listen to the discussion around first infusions, infusion anxieties, and more on our Special Infusion Segment. A new Mental Health Resource Guide is the focus of our Moment For Mental Health Segment with Debbia de la Riva; headlines out of ISTH will come during our Comment Segment; “Is Medicare’s position on pain management changing?” is the central question of our Like Segment, and Ivon Giron shares his powerful Finding My Purpose piece during our Community Share Segment.  All that, plus Mama Sue, Parting Shots, and so much more on Episode 38 of The BloodStream Podcast.

 

Presenting Sponsor: 

Takeda.  Visit http://bleedingdisorders.com to learn more.

 

Segment Sponsors

“Like Segment” made possible by Genentech: https://www.youtube.com/challengeacceptedshow

“Share Segment” made possible by Sanofi Genzyme: https://www.sanofigenzyme.com/

 

Subscribe and rate The BloodStream Podcast in Apple Podcasts

 

Listen to latest Ask The Expert Podcast

 

 

BloodStream Media: bloodstreammedia.com

Stop The Bleeding!: stbhemo.com

Teen Impact Awards: teenimpactawards.com

Bombardier Blood: bombardierblood.com

The Science Fair: thesciencefair.org

 

Like Segment

Medicare weighs whether to pay for acupuncture.

 

Share Segment

Ivan Giron’s Finding My Purpose

 

Comment Segment

ISTH Congress Daily

ISTH Academy App

#ISTH2019 on Twitter

 

A Moment For Mental Health Segment

Debbie de la Riva’s Website

Mental Health Matters Too Resource Guide

 

Infusion Segment

Nat & Pat’s First Infusion Video: 

https://bit.ly/2XJymxP

 

Mama Sue’s Netflix Recs

Exhibit A

The Royal

Bird Brain

 

Connect with BloodStream Media

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream on Facebook

BloodStream on Twitter

 

Jun 28, 2019

In Part 3 of the Hemophilia and Young Adulthood podcast series presented by BloodStream Stories, members of the Hemophilia Association of New Jersey (HANJ) give their perspectives on DATING & INTIMACY, how hemophilia plays a role in a young adult’s FAMILY, and what they HOPE for the future of the hemophilia community. This conversation was recorded live on January 17th, 2018 at the Madison Hotel in Morristown, New Jersey and was co-hosted by BloodStream Media’s Natalie and Patrick Lynch. Series originally made possible by Takeda.

 

BloodStream Media is a podcast network built by and for the bleeding disorders community. Subscribe to BloodStream in Apple Podcasts or visit BloodStreamMedia.com to learn more. Produced by Believe Limited

 

Patient Organization Partner: The Hemophilia Association of New Jersey (HANJ). Learn more about HANJ and their mission by visiting http://hanj.org.

 

BloodStream’s Hemophilia and Young Adulthood series was originally made possible by Takeda. Visit bleedingdisorders.com to find useful tools and resources for managing life with a bleeding disorder.


Jun 27, 2019

In Part 2 of the Hemophilia and Young Adulthood podcast series presented by BloodStream Stories, members of the Hemophilia Association of New Jersey (HANJ) discuss PUSHING LIMITS and finding boundaries, the need for EMOTIONAL SUPPORT, various forms of PAIN MANAGEMENT, and troubling topic of SUBSTANCE ABUSE. This conversation was recorded live on January 17th, 2018 at the Madison Hotel in Morristown, New Jersey and was co-hosted by BloodStream Media’s Natalie and Patrick Lynch. Series originally made possible by Takeda.

 

BloodStream Media is a podcast network built by and for the bleeding disorders community. Subscribe to BloodStream in Apple Podcasts or visit BloodStreamMedia.com to learn more. Produced by Believe Limited

 

Patient Organization Partner: The Hemophilia Association of New Jersey (HANJ). Learn more about HANJ and their mission by visiting http://hanj.org.

 

BloodStream’s Hemophilia and Young Adulthood series was originally made possible by Takeda. Visit bleedingdisorders.com to find useful tools and resources for managing life with a bleeding disorder.

 

Jun 27, 2019

BloodStream Stories presents Hemophilia and Young Adulthood, a special three-part podcast. In Part 1, eight young adult members of the Hemophilia Association of New Jersey (HANJ) weigh in on the topics of IDENTITY as someone with a bleeding disorder; DISCLOSURE in school, professional, and social settings; and TRANSITIONS, such as those from high school to college, from college into the professional world, and from singledom to marriage. This conversation was recorded live on January 17th, 2018 at the Madison Hotel in Morristown, New Jersey and was co-hosted by BloodStream Media’s Natalie and Patrick Lynch.

Series originally made possible by Takeda.

BloodStream Media is a podcast network built by and for the bleeding disorders community. Subscribe to BloodStream in Apple Podcasts or visit BloodStreamMedia.com to learn more. Produced by Believe Limited

Patient Organization Partner: The Hemophilia Association of New Jersey (HANJ). Learn more about HANJ and their mission by visiting http://hanj.org.

BloodStream’s Hemophilia and Young Adulthood series was originally made possible by Takeda. Visit bleedingdisorders.com to find useful tools and resources for managing life with a bleeding disorder.

 

Jun 17, 2019

This month on The BloodStream Podcast, we breakdown “Clotting Factors: Aren’t They Basically All the Same?” from the May issue of  the Parent Empowerment Newsletter (PEN), we discuss one physician’s social media crusade to tear down “fake health news,” we listen to Tabitha White’s story of becoming a hemo mom after losing her hemophiliac father to AIDS, we interview European Haemophilia Consortium Chief Executive Officer Amanda Bok, and Debbie de la Riva leads the latest A Moment For Mental Health segment.  All that, and more, on Episode 37 of The BloodStream Podcast.

 Presenting Sponsor

Segment Sponsors

 

Subscribe and rate The BloodStream Podcast on iTunes

 

Listen to latest Ask The Expert Podcast

 

Like Segment

This doctor is recruiting an army of medical experts to drown out fake health news on Instagram and Twitter

 

Share Segment

Tabitha White’s “Positively Undefined.”

 

Comment Segment

Clotting Factors: Aren’t They Basically All The Same?

 

A Moment For Mental Health Segment

The National Institute of Mental Health  

https://www.nimh.nih.gov/health/topics/post-traumatic-stress-disorder-ptsd/index.shtml

 

National Center for PTSD

https://www.ptsd.va.gov/


Interview Segment

Amanda Bok, CEO of European Haemophilia Consortium

 

Mama Sue’s Netflix Recs

Green Book

Your Inner Fish (Amazon)

Life In The Dog House

 

Connect with BloodStream Media

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream on Facebook

BloodStream on Twitter

Subscribe to BloodStream:

iTunes: http://bit.ly/bloodstreamitunes

Stitcher: http://bit.ly/bloodstreamstitcher

LibSyn: http://bit.ly/bloodstreamlibsyn

SoundCloud: http://bit.ly/bloodstreamSC

TuneIn: http://bit.ly/bloodstreamtunein

Google Play: http://bit.ly/bloodstreamPlay

Spotify: http://spoti.fi/2nNPhui

May 20, 2019

This month on The BloodStream Podcast we talk to Dr. Galen Cole about Cognitive Behavioral Therapy (CBT) and positive psychology, we hear Jeron Hill’s “My Personal Experience” story of living with hemophilia B, autism, and ADHD, and we discuss child anxiety and transitioning care into adulthood during our Like and Comment segments. Plus, the latest from A Moment For Mental Health and Mama Sue’s Netflix Recs! All that, and more, on Episode 36 of The BloodStream Podcast.

 

Presenting Sponsor

- Takeda (https://www.bleedingdisorders.com/)

 

Segment Sponsors

 

Latest Ask The Expert Podcast

 

Leave us a review on iTunes:  Help others find BloodStream!

 

Like Segment: Child Anxiety May Factor Into Multiple School Absences

 

Share Segment: Jeron Hill’s “My Personal Experience”

 

Comment Segment: 6 Ways to Help Your Kid Move to Adult Care

 

A Moment For Mental Health Segment:

Find a therapist in your area: https://www.psychologytoday.com/us

 

Interview Segment: Dr. Galen Cole

BrainSpotting: www.brainspotting.com

Ted’s trauma healing: https://youtu.be/S1CarDqVy2M

EMDR for trauma: https://www.emdr.com/what-is-emdr/

Dr Cole’s books: http://galencole.com/portfolio_category/books/

Founder of CBT (David Burns) recent Ted talk: https://youtu.be/H1T5uMeYv9Q

Top 25 CBT-relevant APPs: https://www.psycom.net/25-best-mental-health-apps

 

Mama Sue’s Netflix Recs:

 

 

 

BloodFeed:

https://www.bloodfeed.com

Connect with BloodStream:

Email mailbag@bloodstreammedia.com

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream Facebook Page

BloodStream Twitter Account

 

Subscribe to BloodStream:

iTunes: http://bit.ly/bloodstreamitunes

Stitcher: http://bit.ly/bloodstreamstitcher

LibSyn: http://bit.ly/bloodstreamlibsyn

SoundCloud: http://bit.ly/bloodstreamSC

TuneIn: http://bit.ly/bloodstreamtunein

Google Play: http://bit.ly/bloodstreamPlay

Spotify: http://spoti.fi/2nNPhui

 

 

Apr 22, 2019

Empowerment isn’t something that appears out of thin air - it’s a culmination, an evolution. Our third and final episode shows how bringing women together and believing their stories leads to empowerment, which these women then spread to their families and communities back home. It illustrates how one well-crafted weekend of education, connection, and fun can shape the next twenty years.


Subscribe to BloodStream:

iTunes: http://bit.ly/bloodstreamitunes

Stitcher: http://bit.ly/bloodstreamstitcher

LibSyn: http://bit.ly/bloodstreamlibsyn

SoundCloud: http://bit.ly/bloodstreamSC

TuneIn: http://bit.ly/bloodstreamtunein

Google Play: http://bit.ly/bloodstreamPlay

Apr 16, 2019

It's World Hemophilia Day and we're honoring our commitment to raise awareness around the world! Ryan Gielen (Believe Limited, Creative Director/Co-Founder & Bloodstream Media, Co-founder) brings you this special episode of Bloodstream. He sits down with the incredible artists, producers, and educators who craft and grow the projects of Believe Limited and Bloodstream Media including; FREE podcasts, FREE videos, and FREE events. Notice a theme? Everything we build for the bleeding disorders community is - and will always be - FREE! Keep listening to hear where to find these projects ...

BloodFeed:

https://www.bloodfeed.com

Connect with BloodStream:

Email mailbag@bloodstreammedia.com

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream Facebook Page

BloodStream Twitter Account

 

Subscribe to BloodStream:

iTunes: http://bit.ly/bloodstreamitunes

Stitcher: http://bit.ly/bloodstreamstitcher

LibSyn: http://bit.ly/bloodstreamlibsyn

SoundCloud: http://bit.ly/bloodstreamSC

TuneIn: http://bit.ly/bloodstreamtunein

Google Play: http://bit.ly/bloodstreamPlay

Spotify: http://spoti.fi/2nNPhui

Apr 15, 2019

This month on The BloodStream Podcast we talk to Dr. Assad Haffar and Dr. Glenn Pierce from the World Federation of Hemophilia about World Hemophilia Day, we hear Molly Livingtone’s “Raising Kids with Hemophilia in Israel” story, Debbie de la Riva returns for our “A Moment for Mental Health Segment,” Natalie and Patrick discuss miscarriages and men as well as Canada’s troubled history with Medicare-For-All during the Like and Comment segments, and Mama Sue returns for the latest streaming recs!  All that and more on Episode 35 of The BloodStream Podcast.

 

 Presenting Sponsor

- Takeda (https://www.bleedingdisorders.com/)

 

Segment Sponsors

 

For more information about the new Emotional Health Outreach Program from The Wingmen Foundation: https://www.wingmenfoundation.org/the-emotional-health-outreach-program/

 

Latest Ask The Expert Podcast: http://www.bloodstreamexpert.com/episodes

 

Leave us a review on iTunes:  Help others find BloodStream!

 

Show Notes:

Like Segment: We Need To Talk About Miscarriages And Men

 

Share Segment: Molly Livingstone “Raising Kids With Hemophilia In Israel” 

 

Comment Segment: The doctor’s strike that nearly killed Canada’s Medicare-For-All plan, explained.

 

A Moment For Mental Health Segment:

Find a therapist in your area: https://www.psychologytoday.com/us

 

Interview Segment: Dr. Assad Haffar & Dr. Glenn Pierce

Official Website for WFH’s World Hemophilia Day Recognition

Official Website for WFH’s Humanitarian Aid Program

 

Mama Sue’s Netflix Recs:

 

 

 

Standard Connect & Subscribe links…

Apr 8, 2019

Far too often, women across the medical spectrum aren’t taken seriously by their doctors. This is particularly true within the bleeding and clotting disorders community. In this episode, we hear about the damage that’s done when women aren’t believed - and the powerful outcomes when they are.

Subscribe to BloodStream:

iTunes: http://bit.ly/bloodstreamitunes

Stitcher: http://bit.ly/bloodstreamstitcher

LibSyn: http://bit.ly/bloodstreamlibsyn

SoundCloud: http://bit.ly/bloodstreamSC

TuneIn: http://bit.ly/bloodstreamtunein

Google Play: http://bit.ly/bloodstreamPlay

Apr 1, 2019

In 1999, an HTC outside Houston, TX created a retreat that focused exclusively on women with bleeding and clotting disorders in the Great Plains region. Twenty years later, it’s going stronger than ever. We start our 3-part series by exploring how these women were brought together, and the forces that have allowed this remarkable event to grow and thrive.

Subscribe to BloodStream:

iTunes: http://bit.ly/bloodstreamitunes

Stitcher: http://bit.ly/bloodstreamstitcher

LibSyn: http://bit.ly/bloodstreamlibsyn

SoundCloud: http://bit.ly/bloodstreamSC

TuneIn: http://bit.ly/bloodstreamtunein

Google Play: http://bit.ly/bloodstreamPlay

Mar 18, 2019

This month on The BloodStream Podcast we discuss the questions to ask if you are considering participating in a clinical trial and how the US is struggling to think about gene therapy and rare disease drug pricing. Jonathan Hill shares his “A Long Road” story, Debbie de la Riva leads us through the first A Moment For Mental Health segment, and writer, producer, and “Unspeakable” creator Robert C. Cooper joins us for the interview.  All that and more on Episode 34 of The BloodStream Podcast.

 

Presenting Sponsor: Takeda

Latest Ask The Expert Podcast

Latest Powering Through Podcast

Leave us a review on iTunes:  Help others from BloodStream!

Like Segment: 6 Key Questions to Ask When Participating in a Clinical Trial from HemAware

A Moment For Mental Health Segment: http://www.mentalhealthamerica.net/

Share Segment: Jonathan Hill’s “A Long Road”

Interview Segment: Robert C. Cooper

Official Website for “Unspeakable”

Official Trailer for “Unspeakable”

Comment Segment: Drugs that cost as much as a house are on the way to treat rare and devastating diseases. The US is scrambling to figure out how to pay for them

 

Mama Sue’s Netflix Recs:


BloodFeed:

https://www.bloodfeed.com

Connect with BloodStream:

Email mailbag@bloodstreammedia.com

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream Facebook Page

BloodStream Twitter Account

 

Subscribe to BloodStream:

iTunes: http://bit.ly/bloodstreamitunes

Stitcher: http://bit.ly/bloodstreamstitcher

LibSyn: http://bit.ly/bloodstreamlibsyn

SoundCloud: http://bit.ly/bloodstreamSC

TuneIn: http://bit.ly/bloodstreamtunein

Google Play: http://bit.ly/bloodstreamPlay

Spotify: http://spoti.fi/2nNPhui

 

Feb 18, 2019

This month on The BloodStream Podcast, we discuss “KonMari-ing” your social media timeline and the case for the controversial gene editing technology CRISPR. We hear from entrepreneur Jimi Olgahere on overcoming sickle cell disease with sickle cell disease, and actor Katy Wright-Mead joins BloodStream to discuss the Sundance Film Festival premiere of sometimes, i think about dying, her new film portraying a young woman struggling with her mental health. All that and more on Episode 33 of The BloodStream Podcast.

 

 

Presenting Sponsor: Takeda

 

Latest Ask The Expert Podcast

 

 

Leave us a review on iTunes!  Help others from BloodStream!

 

Good News for Our Global Community

 

Goodbye News In 60 Seconds:

 

Like Segment: The Secret to Actually Enjoying Your Timeline: The KonMari Timeline

 

Share Segment: Overcoming Sickle Cell with Sickle Cell ; Jimi Olghere speaks during Powering Through @ NHF’s Bleeding Disorders Conference 2017

 

Comment Segment: The Case For CRISPR Babies

 

Interview Segment: sometimes, i think about dying: Official Website

 

Mama Sue’s Netflix Recs:

 

BloodFeed:

https://www.bloodfeed.com

Connect with BloodStream:

Email mailbag@bloodstreammedia.com

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream Facebook Page

BloodStream Twitter Account

 

Subscribe to BloodStream:

iTunes: http://bit.ly/bloodstreamitunes

Stitcher: http://bit.ly/bloodstreamstitcher

LibSyn: http://bit.ly/bloodstreamlibsyn

SoundCloud: http://bit.ly/bloodstreamSC

TuneIn: http://bit.ly/bloodstreamtunein

Google Play: http://bit.ly/bloodstreamPlay

Spotify: http://spoti.fi/2nNPhui

Jan 21, 2019

This month on The BloodStream Podcast, Clive Smith and the UK Haemophilia Society provide an update on the inquiry into the UK’s Contaminated Blood Scandal, Amy Board joins to discuss her new role with Ask The Expert and Believe Limited, Natalie discusses a recent article on how to “invest” in your health, Patrick recaps a the HemAware story on New York Rangers Coach Dan Quinn, and we introduce a new segment: Mama Sue’s Netflix Recs. All that and more on Episode 32 of The BloodStream Podcast!

 

Presenting Sponsor: Shire

 

Latest Ask The Expert Podcast

 

Latest Powering Through Podcast

 

Leave us a review on iTunes!  Help others from BloodStream!

 

Community News In 60 Seconds:

Like Segment: The Right Way to Invest in Your Health

 

Comment Segment: New York Rangers Coach David Quinn on Hockey and Hemophilia

 

Interview Segment: Amy Board, the new host of Ask The Expert!

 

BloodFeed:

https://www.bloodfeed.com

Connect with BloodStream:

Email mailbag@bloodstreammedia.com

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream Facebook Page

BloodStream Twitter Account

 

Subscribe to BloodStream:

iTunes: http://bit.ly/bloodstreamitunes

Stitcher: http://bit.ly/bloodstreamstitcher

LibSyn: http://bit.ly/bloodstreamlibsyn

SoundCloud: http://bit.ly/bloodstreamSC

TuneIn: http://bit.ly/bloodstreamtunein

Google Play: http://bit.ly/bloodstreamPlay

Spotify: http://spoti.fi/2nNPhui

Dec 17, 2018

This month on The BloodStream Podcast, Natalie brings you a 2018 year in review, highlighting some of BloodStream’s greatest moments from the past year.  All that- plus Believe Limited’s creative director Ryan Gielen hosts an interview with several teens who participated in the Breaking Through! Musical Theater Intensive in New York City- and more, on episode 31 of the BloodStream Podcast!

 

Exclusive Sponsor: Shire

Latest Ask The Expert Podcast:

Latest Powering Through Podcast:

TeenImpactAwards.com

BombardierBlood.com

STBhemo.com (Stop The Bleeding!)

Leave us a review on iTunes!  Help others from BloodStream!

 

BloodFeed:

https://www.bloodfeed.com

Connect with BloodStream:

Email mailbag@bloodstreammedia.com

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream Facebook Page

BloodStream Twitter Account

Subscribe to BloodStream:

iTunes: http://bit.ly/bloodstreamitunes

Stitcher: http://bit.ly/bloodstreamstitcher

LibSyn: http://bit.ly/bloodstreamlibsyn

SoundCloud: http://bit.ly/bloodstreamSC

TuneIn: http://bit.ly/bloodstreamtunein

Google Play: http://bit.ly/bloodstreamPlay

Spotify: http://spoti.fi/2nNPhui

Nov 19, 2018

This month on The BloodStream Podcast, Patrick brings you to New England Hemophilia Association’s (NEHA) FallFest to learn about “Current and Emerging Therapies in Hemophilia Care,” and to highlight presentations on the Teen Impact Awards, Stop The Bleeding!, and Bombardier Blood during NEHA’s FallFest. All that- plus a new Share segment from NHF’s Nikole Scappe- and more, on episode 30 of the BloodStream Podcast!

Exclusive Sponsor: Shire

Latest Ask The Expert Podcast: Ep. 20: Women with Bleeding Disorders - w/ Tammy Davenport - October 29, 2018

Latest Powering Through Podcast: Ep. 22 - Colorado w/ Cathy Bombardier, Lacey Jay Henderson and Seth Rojhani

CHECK IT OUT!

TeenImpactAwards.com

BombardierBlood.com

STBhemo.com (Stop The Bleeding!)

Leave us a review on iTunes!  Help others from BloodStream!

 

Share Segment: Leave Your Fingerprint by Nikole Scappe

 

BloodFeed:

https://www.bloodfeed.com

Connect with BloodStream:

Email mailbag@bloodstreammedia.com

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream Facebook Page

BloodStream Twitter Account

Subscribe to BloodStream:

iTunes: http://bit.ly/bloodstreamitunes

Stitcher: http://bit.ly/bloodstreamstitcher

LibSyn: http://bit.ly/bloodstreamlibsyn

SoundCloud: http://bit.ly/bloodstreamSC

TuneIn: http://bit.ly/bloodstreamtunein

Google Play: http://bit.ly/bloodstreamPlay

Spotify: http://spoti.fi/2nNPhui

Oct 22, 2018

This month on The BloodStream Podcast, Natalie records from the National Hemophilia Foundation’s 70th Annual Bleeding Disorders Conference, bringing highlights, small interviews and generally providing the flavor of this year’s annual meeting. In addition to conference coverage, this month we also hear from community member Ben Martin in our Share segment. All that and more on Episode 29 of The BloodStream Podcast!

 

Exclusive Sponsor: Shire

 

Latest Ask The Expert Podcast: 

Ep. 19: The Model Volunteer - w/ Maryann May - September 24, 2018

Latest Powering Through Podcast: 

Ep. 21 - NorCal w/ Lauren Barbounis & Jeremy Dodson

TeenImpactAwards.com

 

TeenImpactAwards.com

 

BombardierBlood.com

 

STBhemo.com (Stop The Bleeding!)

 

Leave us a review on iTunes!  Help others from BloodStream!

 

Welcome to the Club by Ben Martin

 

BloodFeed:

https://www.bloodfeed.com

Connect with BloodStream:

Email mailbag@bloodstreammedia.com

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream Facebook Page

BloodStream Twitter Account

Subscribe to BloodStream:

iTunes: http://bit.ly/bloodstreamitunes

Stitcher: http://bit.ly/bloodstreamstitcher

LibSyn: http://bit.ly/bloodstreamlibsyn

SoundCloud: http://bit.ly/bloodstreamSC

TuneIn: http://bit.ly/bloodstreamtunein

Google Play: http://bit.ly/bloodstreamPlay

Spotify: http://spoti.fi/2nNPhui

Sep 17, 2018

This month on The BloodStream Podcast, the National Hemophilia Foundation’s (NHF) CEO Val Bias and SVP Dawn Rotellini preview NHF’s 70th Annual Bleeding Disorders Conference taking place October 11th-13th in Orlando, Florida.  UK Haemophilia Society trustee Clive Smith shares his Ironman story, Natalie leads a discussion on wearables and health outcomes, and Patrick walks through the recent The Atlantic article on hemophilia and gene therapy titled: The Patients Who Don’t Want To Be Cured. All that and more on Episode 28 of The BloodStream Podcast!

Exclusive Sponsor: Shire

Believe @ #NHF2018: BelieveLTD.com/NHF2018

Latest Ask The Expert Podcast: Ep. 18: Career Counselor Episode - w/ Don Molter - August 27, 2018

Latest Powering Through Podcast: Ep. 20 - NEHA w/ Dr. Jonathan Bernstein, Dr. Stacy Croteau, Emily Bisson, & Caitlin Montcrieff

CHECK IT OUT!

TeenImpactAwards.com

BombardierBlood.com

STBhemo.com (Stop The Bleeding!)

Leave us a review on iTunes!  Help others from BloodStream!

Community News In 60 Seconds:

11-YEAR-OLD WITH RARE BLEEDING DISORDER BAKES ONE-OF-A-KIND CAKES FOR OTHER SICK KIDS

Hemophilia Center of Western New York awards $890,000 grant to UB to address shortage of specialists in non-malignant blood disorder

uniQure (QURE) Reports First Patient Treated in Dose-Confirmation Study of AMT-061 in Patients with Hemophilia B

IDELVION® 3500 IU Vials Now Available to Provide Convenience to Patients

Catalyst Biosciences Announces Publication of Marzeptacog Alfa (Activated) Phase 1 Data in The Journal of Thrombosis and Haemostasis

Promising Data Supports Development of AAVhu37-based Gene Therapy for Hemophilia A

 

Like Segment: Fitness trackers turn health into a game that users rarely win ‘Beyond the Wrist: Rethinking Wearable Technology for Mental Health

Share Segment: Clive Smith - Iron Out The Obstacles

Comment Segment: The Patients Who Don’t Want To Be Cured

Interview Segment: NHF CEO Val Bias and SVP Dawn Rotellini Preview NHF BDC 2018

 

BloodFeed:

https://www.bloodfeed.com

Connect with BloodStream:

Email mailbag@bloodstreammedia.com

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream Facebook Page

BloodStream Twitter Account

Subscribe to BloodStream:

iTunes: http://bit.ly/bloodstreamitunes

Stitcher: http://bit.ly/bloodstreamstitcher

LibSyn: http://bit.ly/bloodstreamlibsyn

SoundCloud: http://bit.ly/bloodstreamSC

TuneIn: http://bit.ly/bloodstreamtunein

Google Play: http://bit.ly/bloodstreamPlay

Spotify: http://spoti.fi/2nNPhui

Aug 20, 2018

 This month on The BloodStream Podcast, Shari Luckey shares her “Living in the Shadows with Mild Hemophilia story, Natalie presents an article on the things you need to know before purchasing CBD oil, we bring to you updates on the legal dispute between Roche/Genentech, and we hear from participants and organizers of the Wheels For The World Barry Haarde Memorial Bike Ride. All that and more on Episode 27 of The BloodStream Podcast!

 

Exclusive Sponsor: Shire

 

Latest Ask The Expert Podcast: Ep. 17: Mental Health - w/ Debbie de la Riva - July 23, 2018

Latest Powering Through Podcast: Ep. 19 - Idaho w/ Preston Bowling, Skyler Openshaw, & Allie Cashel

 

TeenImpactAwards.com

 

BreakingThroughHemophilia.com

 

STBhemo.com (Stop The Bleeding!)

 

Leave us a review on iTunes!  Help others from BloodStream!

 

Community News In 60 Seconds

Like Segment: Before You Buy CBD Oil Online, Ask These Questions

 

Share Segment: Shari Luckey - Living in the shadows with Mild Hemophilia

Comment Segment:

Update on Shire Injunction Filing on Roche/Genentech

Court Rules on Shire/Roche Preliminary Injunction

 

Interview Segment: Laurie Kelley

BloodFeed:

https://www.bloodfeed.com

Connect with BloodStream:

Email mailbag@bloodstreammedia.com

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream Facebook Page

BloodStream Twitter Account

Subscribe to BloodStream:

iTunes: http://bit.ly/bloodstreamitunes

Stitcher: http://bit.ly/bloodstreamstitcher

LibSyn: http://bit.ly/bloodstreamlibsyn

SoundCloud: http://bit.ly/bloodstreamSC

TuneIn: http://bit.ly/bloodstreamtunein

Google Play: http://bit.ly/bloodstreamPlay

Spotify: http://spoti.fi/2nNPhui

Jul 16, 2018

This month on The BloodStream Podcast, community member Lidia Ruiz shares her “An Unexpected Blessing” story, Natalie presents an article on the Step Therapy bill headed to Rhode Island’s state house, we highlight ASH, ISTH, NHF, and WFH’s collaboration in developing clinical practice guidelines for VWD and expectant mom, Rebecca Haber, shares with us how her pregnancy led to discovering that she has Hemophilia C (Factor XI deficiency) in this month’s Interview Segment. All that and more on Episode 26 of The BloodStream Podcast!

Exclusive Sponsor: Shire

Latest Ask The Expert Podcast: Ep. 16: Nutrition - w/ Tracy Mann - June 25, 2018

Latest Powering Through Podcast: Ep. 18 - Florida w/ Lilliam Bervis, Bobby Monohan, & Allie Cashel

TeenImpactAwards.com

BreakingThroughHemophilia.com

STBhemo.com (Stop The Bleeding!)

Leave us a review on iTunes!  Help others from BloodStream!

Community News In 60 Seconds:

  1. Does CRISPR cause cancer?

  2. Developing Inhibitors Inflates Treatment Costs and Impairs Quality of Life, Study Finds

  3. New Canadian study to improve eradication of inhibitors in Hemophilia A patients)

  4. uniQure Enrolls First Patient in Phase III HOPE-B Pivotal Study of AMT-061 in Patients with Hemophilia B)

  5. NHS England greenlights hemophilia drug

  6. CHMP recommends EU marketing authorization for Veyvondi® [vonicog alfa, recombinant von Willebrand factor] for adults with von willebrand disease]

  7. Hemophilia Drug Development Summit Takes Aim at Hurdles Facing New and Upcoming Treatments

  8. Oxidation of FVIII Increases Immune Response in Hemophilia A Mouse Model, Study Finds)

Like Segment: 'Step Therapy' Bill Headed to RI State House // Stand Against Step Therapy: http://www.steptherapy.com/

Share Segment: Lidia Ruiz - An Unexpected Blessing

Comment Segment:

NHF, WFH, ISTH, and ASH to collaborate on clinical practice guidelines for von willebrand disease.

Help Inform Guidelines for VWD Diagnosis and Care

BetterYouKnow.org

Interview Segment: Rebecca Haber

BloodFeed:

https://www.bloodfeed.com

Connect with BloodStream:

Email mailbag@bloodstreammedia.com

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream Facebook Page

BloodStream Twitter Account

Subscribe to BloodStream:

iTunes: http://bit.ly/bloodstreamitunes

Stitcher: http://bit.ly/bloodstreamstitcher

LibSyn: http://bit.ly/bloodstreamlibsyn

SoundCloud: http://bit.ly/bloodstreamSC

TuneIn: http://bit.ly/bloodstreamtunein

Google Play: http://bit.ly/bloodstreamPlay

Spotify: http://spoti.fi/2nNPhui

Jun 18, 2018

This month on BloodStream, we review major takeaways from World Federation of Hemophilia’s 2018 World Congress, Dakota Rosenfelt shares his journey of life with hemophilia, and we speak with Lisa Thibeault, the nurse coordinator from the Southeastern Ontario Regional Inherited Bleeding Disorders Program in Ontario, Canada, about the progress made in the treatment of women with bleeding disorders. All that and more on Episode 25 of The BloodStream Podcast!

Exclusive Sponsor: Shire

World Federation of Hemophilia 2018 World Congress

World Congress Daily Recaps

FDA Clears way for gene therapy

BioMarin presents data on BMN 270

Bayer presents insights on HemACTIVE study

Novo Nordisk presents data on Rebinyn and presents study data on NovoEight

CSL Behring Supports patient advocacy groups through LEAD Program

Octapharma presents data on SubQ-8 and presents data on Nuwiq

UniQure presents data their AAV5 gene therapy program

Bioverativ (a Sanofi company) presents preliminary data for BIVV001

Shire presents data on rVWF in the treatment of people with VWD

National Hemophilia Foundation’s Dawn Rotellini elected to WFH’s Board of Directors.

Genentech/Roche received Priority Review from the FDA for Hemlibra in Hem A patients without inhibitors.

coreHEM publishes Core Outcome Set for Hemophilia Clinical Trials

Spark and Pfizer present data on SPK-9001 and the modified process

New study looks at Von Willebrand Disease, Von Willebrand Factor, and Aging

 

Latest Ask The Expert Podcast: Episode 15 featuring Shari Luckey

Latest Powering Through Podcast: Episode 17 featuring Vanessa Flora, Jason Flora, and Heather Stephenson

Share Segment: Dakota Rosenfelt - A Prescription for Success

Interview Segment: Lisa Thibeault, RN - Let’s Talk Period, from Queen’s University + partners

 

BloodFeed:

https://www.bloodfeed.com

Connect with BloodStream:

Email mailbag@bloodstreammedia.com

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream Facebook Page

BloodStream Twitter Account

Subscribe to BloodStream:

iTunes: http://bit.ly/bloodstreamitunes

Stitcher: http://bit.ly/bloodstreamstitcher

LibSyn: http://bit.ly/bloodstreamlibsyn

SoundCloud: http://bit.ly/bloodstreamSC

TuneIn: http://bit.ly/bloodstreamtunein

Google Play: http://bit.ly/bloodstreamPlay

Spotify: http://spoti.fi/2nNPhui

May 22, 2018

Special guest Laurence Woollard from the UK joins The BloodStream Podcast for Day 3 of the World Federation of Hemophilia's World 2018 Congress!

During this week long special edition of The BloodStream Podcast, host Patrick James Lynch posts daily recaps of the World Federation of Hemophilia's World Congress, held in Glasgow, Scotland from May 20th to May 24th, 2018.

Follow Along: #WFH2018

Connect with BloodStream:

Email mailbag@bloodstreammedia.com

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream Facebook Page

BloodStream Twitter Account

Subscribe to BloodStream:

iTunes: http://bit.ly/bloodstreamitunes

Stitcher: http://bit.ly/bloodstreamstitcher

LibSyn: http://bit.ly/bloodstreamlibsyn

SoundCloud: http://bit.ly/bloodstreamSC

TuneIn: http://bit.ly/bloodstreamtunein

Google Play: http://bit.ly/bloodstreamPlay

Spotify: http://spoti.fi/2nNPhui


Read more at http://bloodstream.libsyn.com/wfh-world-congress-day-2-recap?tdest_id=394637#PUDeY18LOFqdFlpE.99

May 21, 2018

During this week long special edition of The BloodStream Podcast, host Patrick James Lynch posts daily recaps of the World Federation of Hemophilia's World Congress, held in Glasgow, Scotland from May 20th to May 24th, 2018.

Follow Along: #WFH2018

Connect with BloodStream:

Email mailbag@bloodstreammedia.com

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream Facebook Page

BloodStream Twitter Account

Subscribe to BloodStream:

iTunes: http://bit.ly/bloodstreamitunes

Stitcher: http://bit.ly/bloodstreamstitcher

LibSyn: http://bit.ly/bloodstreamlibsyn

SoundCloud: http://bit.ly/bloodstreamSC

TuneIn: http://bit.ly/bloodstreamtunein

Google Play: http://bit.ly/bloodstreamPlay

Spotify: http://spoti.fi/2nNPhui

1 2 Next »