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BloodStream

BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Takeda.
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Now displaying: October, 2016
Oct 17, 2016

In Episode 5, we take a look at recent community news during our Trending Topics Segment- including a new virtual reality game designed to help reduce kids’ anxiety during infusions and a new needle that won’t cause bleeding after it’s removed, and we take a deeper dive into three stories during our Like, Share, Comment Segment. This month we also feature my Sit Down with the iconic HIV/AIDS and hemophilia advocate Jeanne White-Ginder. All that and more, on episode 5 of BloodStream!

Sponsors for Episode 5:

Trending Topics:

  • The National Hemophilia Foundation launches a new series of educational webinars. Link
  • Nationwide Children’s Hospital in Ohio is piloting a virtual reality game designed to help reduce anxiety and stress in pediatric infusions. Link
  • Genetic Linkage Analysis may lead to a simple way to diagnose women carrying the gene causing hemophilia A.  Link (Story) Link (Study)
  • A self-sealing hemostatic needle that won’t cause bleeding when removed from a vein. Link
  • Two tools for patient reported outcomes address the need for personalization of outcomes Link.

Like, Share, Comment Segment:    

  • HFA Gears For Good Riders raise $130,000 for Helping Hands. Link
  • Barry Haarde completes his fifth trans-con bike ride, totaling 5,000 miles and raising over $52,000. Link
  • Alex Dowsett, the professional cyclist with hemophilia, launches Little Bleeders charity to encourage fitness and athletics for children with bleeding disorders. Link
  • Colorado’s Kyle Haas rides 500 miles through mountain passes. Link
  • Sleep resources curated and posted to The BloodStream Blog.
  • HIV now “undetectable” in British man. Link
  • Why talk of HIV cure is premature (from BBC). Link
  • Why it’s too soon to say HIV has been cured (from PopSci). Link
  • amfAR - statistics on young people and HIV (Link) and the US and HIV (Link)

The Sit Down:

  • USA Today’s Top 25 people (1982 - 2007). Link
  • The AIDS Memorial Grove. Link
  • The HIV Story Project. Link
  • Surviving Voices, a collaboration between the HIV Story Project and The Grove. Link

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