Description:
In this episode, Patrick and Natalie review some advocacy best practices, take a look at the increasingly popular cryotherapy, share one mom's (anonymous) story of addiction, hemophilia and family, and during the Sit-Down segment, Patrick speaks with NHF board member Jorge de la Riva about how NHF's board works, his views on health and social advocacy, and his family's personal story of being introduced to hemophilia. All this and more on Episode 9 of BloodStream! Click "Episodes" above to stream or download.
Sponsors for Episode 8:
Presenting Sponsor: Stop The Bleeding! (STB!) Link to STB! Website
Supporting Sponsor: Shire Link to BleedingDisorders.com
Trending Topics:
EMA Names Investigational Gene Therapy, BMN 270, a Priority Medicine for Hemophilia A (Link)
FDA Gives Breakthrough Designation to Hemophilia Gene Therapy (Link)
Daily Infusion of Low-dose Factor VIII Found to Benefit Some Hemophilia A Patients (Link)
LA Kelley Launches a New Edition of Raising a Child With Hemophilia (Link) Learn more about all of LA Kelley’s offerings (Link)
Bioverativ Officially Spins-Off of Biogen’s Hemophilia Business (Link)
HFA 2017 Policy & Government Relations Internship (Link)
New and Improved Blood Brotherhood Forum from HFA (Link)
Bioverativ Officially Spins-Off of Biogen’s Hemophilia Business (Link)
Like Share Comment:
Like: What is cryotherapy and is it effective/safe for people with chronic pain and/or joint problems? Link to Article.
Share: A community Mom shares her story on addiction, family, and bleeding disorders. Link to Article from HFA: Opioids, Addiction, & Bleeding Disorders (Jan 2016).
Comment: Advocacy, Washington Days, and how to advocate an advocate community member: Link to Article from NHF: How to Advocate to Protect Access to Health Insurance. Link to NHF’s Share Your Story Campaign
Sit-Down Segment with NHF Board Member Jorge de la Riva
Jorge on Twitter Link
Connect with BloodStream:
Email mailbag@bloodstreammedia.com
Find all of our bleeding disorders podcasts on BloodStreamMedia.com
Subscribe to BloodStream:
iTunes: http://bit.ly/bloodstreamitunes
Stitcher: http://bit.ly/bloodstreamstitcher
LibSyn: http://bit.ly/bloodstreamlibsyn
SoundCloud: http://bit.ly/bloodstreamSC
TuneIn: http://bit.ly/bloodstreamtunein
Google Play: http://bit.ly/bloodstreamPlay
Believe Limited is excited to announce the launch of not one but TWO new podcasts! Ask the Expert and The Powering Through Podcast join our flagship podcast BloodStream™ to round out the growing BloodStream Media Network. Read a bit more about both podcasts below and make sure to subscribe on your favorite platform! Check out BloodStreamMedia.com!
Ask The Expert features a HTC hematologist or other healthcare expert answering listener-submitted questions about all things bleeding disorders. Ask The Expert is created and produced by Believe Limited and hosted by Patrick James Lynch. Listen and Subscribe!
The Powering Through Podcast features empowering, live panel conversations on obstacles, challenges, and what it takes to overcome, held for the benefit of the bleeding disorders community. The Powering Through Podcast is sponsored by NCHS, produced by Believe Limited, and hosted by Patrick James Lynch. Listen and Subscribe!
BloodStream Media on Social:
Want to submit a question for Ask The Expert? Want to send in an idea for a segment on The BloodStream Podcast? Want to find out more about Powering Through events in your area? Email BloodStream: mailbag@bloodstreammedia.com.