Natalie interviews attendees of NHF’s 71st Bleeding Disorders Conference, Amy & Debbie recap a mental health session from the conference, and we preview a brand new podcast series featuring an incredible community story from Vanessa Flora. Then, DISORDER: The Rare Disease Film Festival co-founder Daniel DeFabio joins Patrick to preview the 2019 festival and its films! All that, plus, safety updates from NHF & HFA, streaming recs from Mama Sue, and more on Episode 41 of The BloodStream Podcast.
Presenting Sponsor:
Takeda: http://bleedingdisorders.com
Segment Sponsor:
Genentech: https://www.youtube.com/challengeacceptedshow (Like Segment)
Safety News
Genentech Issues Statement on Hemlibra Particles; MASAC Responds (10/7)
NHF and HFA’s Joint Letter on Product Safety (10/1)
Interview Segment:
DISORDER: The Rare Disease Film Festival: https://www.rarediseasefilmfestival.com/
A Moment For Mental Health Segment:
Counseling
The Wingmen Foundation
Better Help
Support Groups
National Alliance On Mental Illness
Depression and Bipolar Support Alliance
Mama Sue’s Streaming Recs:
Diet Fiction
For The Birds
Downton Abbey (the movie!)
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Connect with BloodStream Media:
Find all of our bleeding disorders podcasts on BloodStreamMedia.com
Check out Believe Limited’s Other Work:
BloodFeed: bloodfeed.com
Bombardier Blood: bombardierblood.com
Hemophilia: The Musical: breakingthroughhemophilia.com
My Beautiful Stutter: mybeautifulstutter.com/
Stop The Bleeding!: stbhemo.com
Teen Impact Awards: teenimpactawards.com
The Science Fair: thesciencefair.org