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BloodStream

BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Takeda.
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Now displaying: September, 2020
Sep 25, 2020

Self-infuse from anywhere, advocacy wins in Texas, and what the death of Supreme Court Justice Ruth Bader Ginsburg could mean for the future of the Affordable Care Act (ACA) are all topics on today’s episode, plus, an interview with sickle cell and hemophilia expert hematologist Dr. Michael Callaghan, and a reading of a recently published article challenging the scrutiny of gene therapy clinical trials.

 

Presenting Sponsor: Takeda

Segment Sponsor: Genentech

 

NHF’s Blue Sky Initiative

 

Stop The Bleeding!’s Self-Infusion Episode

 

Aggregate of articles on Supreme Court vacancy

 

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Sep 18, 2020

Roy Ginder, the husband of notable AIDS and hemophilia advocate Jeanne White-Ginder, passed away early Wednesday morning. We pay tribute to Roy and share moving audio from a 2017 interview he gave to Patrick about the love of his life, Jeanne White.

 

Presenting Sponsor: Takeda

 

Fundraiser to support Jeanne White-Ginder

 

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Sep 11, 2020

The Disorder Channel and DISORDER: Rare Disease Film Festival co-founder and rare disease parent Bo Bigelow joins BloodStream to discuss a recent article on the parents who are navigating the “wilderness” of rare genetic disease and to preview The Disorder Channel’s work at the upcoming Global Genes Patient (un)Summit!

 

Presenting Sponsor: Takeda

 

The Wilderness of Rare Genetic Disease and the Parents Navigating It

The Disorder Channel & Rare Disease Film Festival

Global Genes LIVE! A RARE Patient Advocacy (un)Summit!

Bo’s Stronger Everyday Podcast

Wheels for The World with Save One Life: Sign up today!

 

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Sep 4, 2020

Amy introduces The Believe 19,  a new segment with an interview with Rue Mapp, founder and CEO of Outdoor Afro. Outdoor Afro is a national organization celebrating and inspiring Black connections and leadership in nature. We’ll hear what their work is all about!  Also, Patrick and Natalie share their excitement to participate in Save One Life’s annual fundraiser, Wheels for The World. Listen in to celebrate giving back and learn more about different ways to contribute to the good work being done in our communities! 

 

Presenting Sponsor: Takeda

Learn More about Outdoor Afro: Outdoor Afro Website

Sign up for Wheels for the World: Save One Life 

Listen to the It’s in the Gene’s Podcast!: Gene Therapy Podcast

 

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