Patrick and Amy are joined by Save One Life board member Natalie Lynch to discuss the organization’s focus to start the year as well as to share updates from her pregnancy journey! The three also discuss recently published non-viral gene therapy data and welcome on blood brother and musician Tamar Mitchell.
Notes:
PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
SAVE One Life: http://bit.ly/S1L2021
NON-VIRAL Gene Therapy: http://bit.ly/GenBio2021
TAMAR Mitchell IG: http://bit.ly/TamarMitchellIG
TAMAR Mitchell YT: http://bit.ly/TamarMitchellYT
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Patrick and Amy discuss a recently published article by clinicians urging colleagues to educate their patients via social media. Then, our hosts bring on Brian O’Mahony to discuss his gene therapy clinical trial experience, his take on recent community news, and how the Irish Haemophilia Society has fared through COVID19.
Notes:
PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
BRIAN on Twitter: http://bit.ly/BOMtwitter
TWITTER changing hematology: http://bit.ly/TwitterASH21
MEN born w hemophilia on gene therapy: http://bit.ly/RobustInquiry
GENE therapy trial placed on hold: http://bit.ly/GTtrialHold
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Patrick and Amy discuss the long-awaited Von Willebrand Disease (vWD) guidelines published in the medical journal, Blood; provide an exciting update on a recent “Believe 19” guest, and speak to Camille Proctor, founder of The Color Of Autism Foundation.
Notes:
PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
vWD Clinical Guidelines: http://bit.ly/vWDguidelines
FLOW podcast: http://bit.ly/FLOWBSM
PHILLY Famous podcast: http://bit.ly/PhillyFamousPodcast
COLOR of Autism Foundation: http://bit.ly/ColorOfAutism
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#hemophilia #vonwillebranddisease #vwd #autism #podcast
Patrick and Amy review NHF’s FAQs regarding the COVID-19 vaccine’s safety for people with bleeding disorders, discuss recent healthcare legislative victories, and welcome Christie VanHorne and Jessica Richmond, hosts of BloodStream Media’s newest show full of straight talk about extreme bleeding: FLOW.
PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
FLOW podcast: http://bit.ly/FLOWBSM
CHRISTINE VanHorne on LinkedIn: http://bit.ly/CVHonLI
JESSICA Richmond on LinkedIn: http://bit.ly/JLRonLI
NEHA Fund for Max: http://bit.ly/nehamemorial
WASHINGTON Days registration: http://bit.ly/DCDays2021
COVID-19 Vaccine FAQs from NHF: http://bit.ly/COVIDvaccineNHF
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Patrick and Amy kick off the new year with health equity specialist and community member Alexa Abreu to discuss the role diversity and inclusion plays in achieving health equity.
PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
ALEX on LinkedIn: http://bit.ly/AlexaOnLI
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