Andy Slavitt, the former head of Medicare, Medicaid, and the Affordable Care Act (ACA) under President Obama, joins us for a very special interview segment on the importance of the ACA for people with hemophilia. UK-based community advocate Laurence Woollard provides insight into the UK bleeding disorders community and his personal journey in hemophilia advocacy. Natalie leads a New York Times story on the debate surrounding how to price gene therapy treatments, and Patrick provides an overview of the recent, terrible news of a patient death during the Fitusrian clinical trial - what happened, what it means, and what happens next? Listen now on Episode 16 of The BloodStream Podcast.
Exclusive Sponsor for Episode 16: Shire
Like Share Comment Segments
Like: NYT: New Gene-Therapy Treatments Will Carry Whopping Price Tags
Share: Laurence Woollard’s “The Endeavour to Progress”
Comment: Alnylam Suspends All Trials of Fitusiran After Hemophilia A Patient Dies in Phase 2 Study // Story from RareDr.com // Story from FierceBiotech
Andy Slavitt Interview
Other Links of Interest
BloodFeed:
Powering Through Podcast
http://poweringthrough.org/podcast
Ask The Expert Podcast