Self-infuse from anywhere, advocacy wins in Texas, and what the death of Supreme Court Justice Ruth Bader Ginsburg could mean for the future of the Affordable Care Act (ACA) are all topics on today’s episode, plus, an interview with sickle cell and hemophilia expert hematologist Dr. Michael Callaghan, and a reading of a recently published article challenging the scrutiny of gene therapy clinical trials.
Presenting Sponsor: Takeda
Segment Sponsor: Genentech
NHF’s Blue Sky Initiative
Stop The Bleeding!’s Self-Infusion Episode
Aggregate of articles on Supreme Court vacancy.
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Roy Ginder, the husband of notable AIDS and hemophilia advocate Jeanne White-Ginder, passed away early Wednesday morning. We pay tribute to Roy and share moving audio from a 2017 interview he gave to Patrick about the love of his life, Jeanne White.
Presenting Sponsor: Takeda
Fundraiser to support Jeanne White-Ginder
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The Disorder Channel and DISORDER: Rare Disease Film Festival co-founder and rare disease parent Bo Bigelow joins BloodStream to discuss a recent article on the parents who are navigating the “wilderness” of rare genetic disease and to preview The Disorder Channel’s work at the upcoming Global Genes Patient (un)Summit!
Presenting Sponsor: Takeda
The Wilderness of Rare Genetic Disease and the Parents Navigating It
The Disorder Channel & Rare Disease Film Festival
Global Genes LIVE! A RARE Patient Advocacy (un)Summit!
Bo’s Stronger Everyday Podcast
Wheels for The World with Save One Life: Sign up today!
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Amy introduces The Believe 19, a new segment with an interview with Rue Mapp, founder and CEO of Outdoor Afro. Outdoor Afro is a national organization celebrating and inspiring Black connections and leadership in nature. We’ll hear what their work is all about! Also, Patrick and Natalie share their excitement to participate in Save One Life’s annual fundraiser, Wheels for The World. Listen in to celebrate giving back and learn more about different ways to contribute to the good work being done in our communities!
Presenting Sponsor: Takeda
Learn More about Outdoor Afro: Outdoor Afro Website
Sign up for Wheels for the World: Save One Life
Listen to the It’s in the Gene’s Podcast!: Gene Therapy Podcast
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