Patrick and Amy are live, in-studio, for the first BloodStream LIVE of the year! Join the hosts and a variety of special guests for segments on patient education, the return of in-person patient meetings, asking for help, and so much more- including an announcement about a major rare disease podcast joining BloodStream Media!
Notes:
Presenting Sponsor: TAKEDA - bit.ly/TakedaBDsite
Let’s Talk Segment Sponsor: SANOFI GENZYME - http://bit.ly/LetsTalkMHBSP
CHECK OUT all our stuff: bit.ly/AllBloodStreamStuff
SUBSCRIBE to BloodStream on Apple Podcasts: bit.ly/BSPAP
SUBSCRIBE to Once Upon A Gene Podcast: bit.ly/OUAGspot
SUBMIT to the BIG BLOODY TALENT SHOW: bit.ly/BigBloodyTalentShow
SIGNUP for our FIRST-EVER NEWSLETTER: bit.ly/NewslettterSignups
Patrick and Amy catch up on some recent community news then speak with leukemia survivor and bone marrow transplant recipient Bob Falkenberg as he’s set to kick off his 10th Lifeblood cycling ride to support Be The Match.
Notes:
PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
SUBSCRIBE to BloodStream on Apple Podcasts: bit.ly/BSPAP
CHECK OUT all our stuff: bit.ly/AllBloodStreamStuff
BloodStream LIVE May 26th - Event link: http://bit.ly/BloodStreamIsBack
Bob’s Team Lifeblood: http://bihttps://bit.ly/3yaPj2U
NHF’s Community Voices in Research: http://bit.ly/CVRNHF
CSL and uniQure close agreement: http://bit.ly/CSLuni
Experimental SubQ Inhibitor Treatment: http://bit.ly/SubQinhib
Patrick and Amy speak to Kathy Raufi on the brink on International Thalassemia Day, get input from the Coalition for Hemophilia B on some recent news, and discuss how von willebrand factor may be key to helping treat clotting disorders, too!
PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
SUBSCRIBE to BloodStream on Apple Podcasts: bit.ly/BSPAP
CHECK OUT all our stuff: bit.ly/AllBloodStreamStuff
International Thalassemia Day #ITD2021
To learn more about iron overload, treatments, comorbidities with Thalassemia, and more, visit:
Thalassemia Foundation of Canada:
Cooley’s Anemia Foundation:
https://bit.ly/2RudLeX
Patients’ Stories: