Patrick is joined by dynamic duo, Dr. Kevin Kuo and Dr. Hanny Al-Samkari who share more about Alpha and Beta Thalassemia, a sister blood disorder to hemophilia. Plus, we’ll get an update on Patrick’s chronic pain & Amy’s writing as well as a brand new Let’s Talk segment on aging and changing.
Show Notes:
Let’s Talk is brought to you by Sanofi
Metal Heath Educational Resources
Visit Shareyourwhy.com to meet the Sanofi CoRe team and hear from them and members of the community about their story and passion for the hemophilia community.
Subscribe to BloodStream Podcast
Connect with BloodStream Media:
Patrick and Amy are joined by three of the most prolific and committed rare disease podcasters out there: Effie Parks from Once Upon A Gene, Kyle Bryant from Two Disabled Dudes, and Bo Bigelow from Stronger Every Day. Those three titans behind the mic join us for a candid discussion about patient centricity, we touch on some recent news, FLOW’s Jessica Lauren Richmond is back with the latest installment of The Well.
Show Notes:
Subscribe to:
Recent novel therapy news:
CSL Behring gene therapy makes comeback after hold for FDA priority review
BioMarin delays planned FDA filing for hemophilia gene therapy
FDA Grants Breakthrough Therapy Designation to BIVV001 for Hemophilia A Treatment
Presenting Sponsor: Takeda.
Visit bleedingdisorders.com to learn more.
The Bloodstream Podcast is brought to you in part by a new campaign from CSL Behring called Portraits of Progress. To learn more, check out www.PortraitsofProgress.com
Subscribe to BloodStream Podcast
Connect with BloodStream Media: