We Show Our Stripes for Rare Disease Day by welcoming NHF Education Specialist, Teen Impact Awards Host, and all-around wonderful advocate, Nikole Scappe to discuss her new book for rare bleeding disorders, Super Seven! Also, Amy shares a press release from NHF, WFH, and EHC on the recent Fitusiran clinical trial updates. A can’t miss episode of BloodStream!

Program Notes: 

Register for the Super Seven Launch Party: https://www.hemophilia.org/events/nhf-book-launch-party 

Fitusiran Press Release: https://www.hemophilia.org/news/sanofi-revises-fitusiran-dosing-regimen-to-mitigate-risk-of-vascular-thrombosis 

Show Your Stripes For Rare Disease Day with NORD: https://rarediseases.org/rare-disease-day/ 

Amy and producer, Greg, share what Bloodstream has in store for Bleeding Disorders Awareness Month and Corey MacGregor, from Tremeau Pharmaceuticals, stops by to share her personal journey with chronic pain and why The Pain Pod was an opportunity she was passionate about. 

SUBSCRIBE and listen to The Pain Podcast 

Patrick and Amy discuss some of the topics presented during #EAHAD2021’s Virtual Conference before Amy’s joined by FLOW host Jessica Richmond for an interview with pediatric hematologist/oncologist Dr. Angela Weyand, aka the “Shematologist!”

Notes:

PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

CHECK OUT ALL OUR SHOWS: http://bit.ly/AllBloodStreamStuff

#EAHAD2021 on-demand: http://bit.ly/EAHAD2021

DR ANGELA WEYAND on Twitter: http://bit.ly/Shematologist

Patrick and Amy are joined by Effie Parks from the Once Upon A Gene podcast and Mel Forrest from Season 2 of The Pain Podcast!  They also touch on recent bleeding disorders news and preview next week’s exciting expert guest!

Notes:

PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

CHECK OUT ALL OUR SHOWS: http://bit.ly/AllBloodStreamStuff

ONCE UPON A GENE PODCAST: http://bit.ly/EffiesShow

PAIN PODCAST: http://bit.ly/PainPodS2