Patrick and Amy are joined by Julie Kim, President of the Plasma-Derived Therapies Business Unit for Takeda, to discuss Takeda’s 5-year commitment to the WFH Humanitarian Aid Program. Then later in the show they’re joined by frequent contributor Alexa Abreu and her sister Juliemar - a former Teen Impact Honoree - to discuss the uncelebrated accomplishments of our youth and what supporting young people should actually look like.
Notes:
PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
SUBSCRIBE to BloodStream on Apple Podcasts: bit.ly/BSPAP
CHECK OUT all our stuff: bit.ly/AllBloodStreamStuff
NOMINATIONS for the Teen Impact Awards: http://bit.ly/TIA2021bsp
TAKEDA joins WFH’s Humanitarian Aid Program: bit.ly/WFHTakeda2021
Patrick and Amy are joined by FLOW Podcast host Jessica Lauren Richmond to discuss assessing women’s health holistically and by Ruby Ball Foundation founder Ijeoma Azubuko to hear the harrowing story that led to her foundation’s innovative work. We also debut our new Let’s Talk mental health segment, featuring key moments from and expert insights into the Believe Limited documentary by the same name profiling mental health challenges in the bleeding disorders community.
Notes:
PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
LET’S TALK SEGMENT SPONSOR: Sanofi Genzyme - http://bit.ly/LetsTalkMHBSP
SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP
CHECK OUT all our stuff: bit.ly/AllBloodStreamStuff
FLOW Podcast: http://bit.ly/FLOWpod
Ruby Ball Foundation: http://bit.ly/RubyBallIG
Silent Podcast: http://bit.ly/SilentPodcastRBF
Amy and Patrick speak with students at Brown University who’ve been working with Save One Life in honor of World Hemophilia Day, and USP7 Foundation Chairman Bo Bigelow joins to discuss important news in the USP7 world on the heels of Hao-Fountain Syndrome Awareness Day.
Notes:
PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP
CHECK OUT all our stuff: bit.ly/AllBloodStreamStuff
Breaking Through: https://bit.ly/3smEGpN
Teen Impact Awards: https://bit.ly/2Q9zXue
Help Save One Life: https://bit.ly/3elfs6f
Stronger Every Day Podcast: https://bit.ly/3tmui2v
USP7 Foundation: https://bit.ly/2Q6oEmH
DISORDER Rare Disease Film Festival: https://bit.ly/3gcv7qK
Amy and Patrick review MASAC’s new recommendations for women with bleeding disorders, provide an important update on a recent clinical trial investigation, and discuss bullying during COVID. Then filmmaker Ryan Gielen joins to talk about his new documentary, My Beautiful Stutter, now streaming on discovery+.
Notes:
PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
MY BEAUTIFUL STUTTER: http://bit.ly/MBSLetMeSpeak
SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP
CHECK OUT all our stuff: bit.ly/AllBloodStreamStuff
American Rescue Plan (ARP) info from NHF: http://bit.ly/NHFARP2021
Gene Therapy Clinical Trial Investigation: http://bit.ly/GTinvestigation2021
MASAC recommendations for women: http://bit.ly/MASACwomen
Cyberbullying in India: http://bit.ly/CyberIndia2021
Lunula Nutrition’s Delisa O’Brien joins Amy and Patrick to discuss our relationship to exercise and curative therapies. Then, Laurence Woollard joins to discuss his recent articles, one on adolescent transitional healthcare, the other on COVID-19’s impacting patient education through social media.
Notes:
PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite
Check out how to customize your exercise routine with Takeda at http://bit.ly/LivingHealthyBD
Delisa O’Brien - Lunula Nutrition Consulting
http://bit.ly/DelisaOnNutrition
Laurence Woollard - On The Pulse Consultancy
http://bit.ly/LaurenceInRareRev
http://bit.ly/LaurenceOnTwitter
SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP
CHECK OUT all our stuff: bit.ly/AllBloodStreamStuff