Safety, Vigilance and New Frontiers (Episode 3, The Factor Revolution, originally published 10/2017) pulls together more interviews with advocacy and industry leaders, like Michelle Rice (Senior VP of External Affairs, National Hemophilia Foundation), Andy Slavitt (Former Obama Administration Medicare, Medicaid and ACA Overseer), and Dr. Steven Pipe (Director, Coagulation Laboratory, University of Michigan), who give incredible insight on the future of bleeding disorders treatments and access to care. This series - and especially this episode - was created in partnership with The HIV Story Project and the seminal documentary film, Bad Blood.BloodStream Media is proud to present The Factor Revolution: The Last 60 Years in Hemophilia Treatment, a three-episode special series with over forty interviews from community members, doctors, experts and advocates. We take a deep look at the history of factor treatment from the 1950's to today. The Factor Revolution pulls together source material, news reports, white papers, and original audio content from the film Bad Blood and the "HIV Story Project."
Presenting Sponsor: Takeda
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Find all of our bleeding disorders podcasts on BloodStreamMedia.com
The Revolution Begins (Episode 1, The Factor Revolution, originally published 10/2017) takes a look at the early breakthroughs of the 1950's, that ended centuries of stagnation in hemophilia treatment. From whole-blood treatments to the discovery of cryo, to the first iterations of what we now know as "factor," we talk to experts and advocates about the incredible discoveries that almost didn't happen. You have to hear it to believe it.BloodStream Media is proud to present The Factor Revolution: The Last 60 Years in Hemophilia Treatment, a three-episode special series with over forty interviews from community members, doctors, experts and advocates. We take a deep look at the history of factor treatment from the 1950's to today. The Factor Revolution pulls together source material, news reports, white papers, and original audio content from the film Bad Blood and the "HIV Story Project."
Presenting Sponsor: Takeda
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Blood brother Michael Bishop joins to discuss quarantine life with Patrick, Ask The Expert host Amy Board joins to share her experience in self-isolation, plus WFH, HFA, and NHF updates!
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Find all of our bleeding disorders podcasts on BloodStreamMedia.com
Patrick & Natalie are joined by Ask The Expert’s Amy Board for a health-data driven Like Segment, and the hilarious Zach Anner joins to talk comedy, cerebral palsy, and to share his well-balanced perspective of life.
Zach Anner’s If At Birth You Don’t Succeed
2020 Teen Impact Awards & Adam Lynch Scholarship
“These startups are innovating the future of healthcare”
Like Segment Sponsor: Genentech
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Come with @pjlynch on Twitter
Patrick and Natalie discuss air travel this week, doctors Mike & Ahmar from Cheat Codes update us on the numbers and recommendations, Jeremy from NY shares his chapter leadership and personal experience, and Emily from CT shares what her first week in quarantine has been like. Plus updates on national and regional events and BloodStream’s plans for the near future.
CoronaVirus.com
STBhemo.com
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Connect with BloodStream Media:
Find all of our bleeding disorders podcasts on BloodStreamMedia.com
Check out Believe Limited’s Other Work:
Bombardier Blood: bombardierblood.com
Hemophilia: The Musical: breakingthroughhemophilia.com
My Beautiful Stutter: mybeautifulstutter.com/
Stop The Bleeding!: stbhemo.com
Teen Impact Awards: teenimpactawards.com
The Science Fair: thesciencefair.org
Indian-Canadian-American writer, actress, and comedian Natasha Chandel from the 'Kinda Dating' podcast joins the show to discuss her debilitating eight-year odyssey with undiagnosed Lyme disease, her writing for Season Two of Netflix's 'Mr. Iglesias,' and her acting in 'Baker's Dozen' on Amazon Prime!
Natasha on Instagram
Natasha on Twitter
Listen to the Kinda Dating Podcast
Watch Baker's Dozen on Amazon Prime
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Connect with BloodStream Media:
Find all of our bleeding disorders podcasts on BloodStreamMedia.com
Check out Believe Limited’s Other Work:
Bombardier Blood: bombardierblood.com
Hemophilia: The Musical: breakingthroughhemophilia.com
My Beautiful Stutter: mybeautifulstutter.com/
Stop The Bleeding!: stbhemo.com
Teen Impact Awards: teenimpactawards.com
The Science Fair: thesciencefair.org
BloodStream's Patrick James Lynch is joined by Dr Ahmar Zaidi & Dr Mike Callaghan from Cheat Codes: A Sickle Cell Podcast to discuss the coronavirus (COVID-19) and what it means for people affected by sickle cell disease, hemophilia, and beyond.
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Patrick shares his experience from National Hemophilia Foundation’s Washington Days (#NHFWD), complete with over a dozen community interviews, including one with NHF’s new CEO Dr. Len Valentino!
Chinedu Felix Osuchukwu’s website and Instagram.
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Connect with BloodStream Media:
Find all of our bleeding disorders podcasts on BloodStreamMedia.com
Check out Believe Limited’s Other Work:
Bombardier Blood: bombardierblood.com
Hemophilia: The Musical: breakingthroughhemophilia.com
My Beautiful Stutter: mybeautifulstutter.com/
Stop The Bleeding!: stbhemo.com
Teen Impact Awards: teenimpactawards.com
The Science Fair: thesciencefair.org
Rebecca and Nicola join BloodStream to discuss the importance of Rare Disease Day, the launching of Rare Revolution Magazine, and more!
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Connect with BloodStream Media:
Find all of our bleeding disorders podcasts on BloodStreamMedia.com
Check out Believe Limited’s Other Work:
Bombardier Blood: bombardierblood.com
Hemophilia: The Musical: breakingthroughhemophilia.com
My Beautiful Stutter: mybeautifulstutter.com/
Stop The Bleeding!: stbhemo.com
Teen Impact Awards: teenimpactawards.com
The Science Fair: thesciencefair.org
Subscribe to and rate The BloodStream Podcast
Subscribe to and rate The Ask The Expert Podcast
Subscribe to and rate BloodStream Journeys
Subscribe to and rate Cheat Codes: A Sickle Cell Podcast
Connect with BloodStream Media:
Find all of our bleeding disorders podcasts on BloodStreamMedia.com
Check out Believe Limited’s Other Work:
Bombardier Blood: bombardierblood.com
Hemophilia: The Musical: breakingthroughhemophilia.com
My Beautiful Stutter: mybeautifulstutter.com/
Stop The Bleeding!: stbhemo.com
Teen Impact Awards: teenimpactawards.com
The Science Fair: thesciencefair.org
Actor, comedian, producer, and advocate for little people and people with disabilities, Nic Novicki joins BloodStream to discuss his career, his screenplay recognized by the Disability List, and his Easterseals Disability Film Challenge.
Follow Nic on Instagram @nicnovicki
Get involved with the Easterseals Disability Film Challenge
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Connect with BloodStream Media:
Find all of our bleeding disorders podcasts on BloodStreamMedia.com
Check out Believe Limited’s Other Work:
Bombardier Blood: bombardierblood.com
Hemophilia: The Musical: breakingthroughhemophilia.com
My Beautiful Stutter: mybeautifulstutter.com/
Stop The Bleeding!: stbhemo.com
Teen Impact Awards: teenimpactawards.com
The Science Fair: thesciencefair.org
NHF announces a mental health initiative, Natalie offers air travel advice, and doctors Mike and Ahmar from Cheat Codes: A Sickle Cell Podcast join for the interview!
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Read the coreHEM article
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Connect with BloodStream Media:
Find all of our bleeding disorders podcasts on BloodStreamMedia.com
Check out Believe Limited’s Other Work:
BloodFeed: bloodfeed.com
Bombardier Blood: bombardierblood.com
Hemophilia: The Musical: breakingthroughhemophilia.com
My Beautiful Stutter: mybeautifulstutter.com/
Stop The Bleeding!: stbhemo.com
Teen Impact Awards: teenimpactawards.com
The Science Fair: thesciencefair.org
Comedian Avra Friedman joins BloodStream Mini just ahead of Valentine's Day to talk about her unique comedy show/live-dating event, All My Single Friends!
Follow Avra on Instagram @avrafriedman
All My Single Friends @allmysinglefriends
Facebook: All My Single Friends
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Connect with BloodStream Media:
Find all of our bleeding disorders podcasts on BloodStreamMedia.com
Check out Believe Limited’s Other Work:
BloodFeed: bloodfeed.com
Bombardier Blood: bombardierblood.com
Hemophilia: The Musical: breakingthroughhemophilia.com
My Beautiful Stutter: mybeautifulstutter.com/
Stop The Bleeding!: stbhemo.com
Teen Impact Awards: teenimpactawards.com
The Science Fair: thesciencefair.org
Our first ever BloodStream LIVE! The ups, downs, and early surprises of 2020; announcements and news updates; plus, a conversation with Ask The Expert’s Amy Board.
Presenting Sponsor:
Takeda: http://bleedingdisorders.com
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Connect with BloodStream Media:
Find all of our bleeding disorders podcasts on BloodStreamMedia.com
Check out Believe Limited’s Other Work:
BloodFeed: bloodfeed.com
Bombardier Blood: bombardierblood.com
Hemophilia: The Musical: breakingthroughhemophilia.com
My Beautiful Stutter: mybeautifulstutter.com/
Stop The Bleeding!: stbhemo.com
Teen Impact Awards: teenimpactawards.com
The Science Fair: thesciencefair.org
Dr. Laura Fox, physical therapist at the University of Colorado's HTC, joins BloodStream.
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Connect with BloodStream Media:
Find all of our bleeding disorders podcasts on BloodStreamMedia.com
Check out Believe Limited’s Other Work:
BloodFeed: bloodfeed.com
Bombardier Blood: bombardierblood.com
Hemophilia: The Musical: breakingthroughhemophilia.com
My Beautiful Stutter: mybeautifulstutter.com/
Stop The Bleeding!: stbhemo.com
Teen Impact Awards: teenimpactawards.com
The Science Fair: thesciencefair.org
Dogs with hemophilia on gene therapy show troubling results in liver studies; The ACA is threatened; mental illness claims another; Breaking Through! is enrolling, Journeys is casting, and Kim Phelan from the Coalition for Hemophilia B joins.
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Presenting Sponsor:
Takeda: http://bleedingdisorders.com
Segment Sponsor:
Genentech: https://www.youtube.com/challengeacceptedshow
Like Segment
28 Patient Groups Disappointed in 5th Circuit Court Ruling in Texas v. US.
Comment Segment
Virus used in gene therapies may pose cancer risk, dog study finds.
Interview Segment:
Kim Phelan, Vice President, Coalition for Hemophilia B
Trust Me, I’m Sick:
Philly Famous Podcast:
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Connect with BloodStream Media:
Find all of our bleeding disorders podcasts on BloodStreamMedia.com
Check out Believe Limited’s Other Work:
BloodFeed: bloodfeed.com
Bombardier Blood: bombardierblood.com
Hemophilia: The Musical: breakingthroughhemophilia.com
My Beautiful Stutter: mybeautifulstutter.com/
Stop The Bleeding!: stbhemo.com
Teen Impact Awards: teenimpactawards.com
The Science Fair: thesciencefair.org
Health Insurance Update! Confusion remains about the ACA’s coverage deadlines nationwide, so we put together this short special episode to help! Tons of important updates and links (1 in 5 Americans can STILL access coverage for 2020)!
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Presenting Sponsor:
Takeda: http://bleedingdisorders.com
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Subscribe to and rate Cheat Codes: A Sickle Cell Podcast
Connect with BloodStream Media:
Find all of our bleeding disorders podcasts on BloodStreamMedia.com
Check out Believe Limited’s Other Work:
BloodFeed: bloodfeed.com
Bombardier Blood: bombardierblood.com
Hemophilia: The Musical: breakingthroughhemophilia.com
My Beautiful Stutter: mybeautifulstutter.com/
Stop The Bleeding!: stbhemo.com
Teen Impact Awards: teenimpactawards.com
The Science Fair: thesciencefair.org
SPECIAL EPISODE: BloodStream's interview with actor/producer Katy Wright-Mead, whose short film sometimes, i think about dying premiered at Sundance in 2019 and has been shortlisted for the 2020 Academy Awards! Listen then watch #SITAD at: https://bit.ly/36wEmKG
Alex Borstein joins BloodStream from the promo tour of The Marvelous Mrs. Maisel, Patrick covers highlights from a recent PEN article on gene therapy and clinical trials, and Natalie presents a piece on managing depression during the holidays. All that, plus a teaser from BloodStream Media’s latest pod BloodStream Journeys, and more, coming up on Episode 43 of The BloodStream Podcast.
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Presenting Sponsor:
Takeda: http://bleedingdisorders.com
Segment Sponsor:
Like Segment made possible by Genentech: https://www.youtube.com/challengeacceptedshow Learn more about Genentech’s mental health workshops by calling 1-866-436-5427
Like Segment
Crazy Talk: I’m Afraid My Depression Will Ruin Everyone’s Holiday
Comment Segment
Volunteering for a Gene Therapy Clinical Trial? Read This First.
Interview Segment:
Alex Borstein on NPR’s Fresh Air
Watch: The Marvelous Mrs. Maisel Season 3 on Amazon
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Connect with BloodStream Media:
Find all of our bleeding disorders podcasts on BloodStreamMedia.com
Check out Believe Limited’s Other Work:
BloodFeed: bloodfeed.com
Bombardier Blood: bombardierblood.com
Hemophilia: The Musical: breakingthroughhemophilia.com
My Beautiful Stutter: mybeautifulstutter.com/
Stop The Bleeding!: stbhemo.com
Teen Impact Awards: teenimpactawards.com
The Science Fair: thesciencefair.org
Patrick shares moments from DISORDER: The Rare Disease Film Festival, author & advocate Cazandra Campos-MacDonald joins to discuss her new book Dear Hemophilia, we discuss Open Enrollment’s closing on December 15th, provide you a first-hand account of living with depression during A Moment for Mental Health, hear entertainment recs from Mama Sue, and more, on Episode 42 of The BloodStream Podcast.
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Presenting Sponsor:
Takeda: http://bleedingdisorders.com
Segment Sponsor:
Like Segment made possible by Genentech: https://www.youtube.com/challengeacceptedshow
Open Enrollment Closes Dec 15
Learn more and sign up
HFA’s Open Enrollment Guide
DISORDER: The Rare Disease Film Festival
Official Website
https://www.rarediseasefilmfestival.com/
Cynthia Wade (Beyond Blue)
Kyle Anne Grendys (Fraser Syndrome & Me)
https://filmfreeway.com/FraserSyndromeandMe
Interview Segment:
Cazandra Campos-MacDonald - Dear Hemophilia
https://cazandracmacdonald.com/
A Moment For Mental Health Segment:
Okay, I’ll admit it: I’m depressed.
http://www.patrickjameslynch.com/blog/2018/5/19/okay-ill-admit-it-im-depressed
Support Groups
National Alliance On Mental Illness
Depression and Bipolar Support Alliance
Mama Sue’s Streaming Recs:
Modern Love
Tell Me Who I Am
90 Day Fiance
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Connect with BloodStream Media:
Find all of our bleeding disorders podcasts on BloodStreamMedia.com
Check out Believe Limited’s Other Work:
BloodFeed: bloodfeed.com
Bombardier Blood: bombardierblood.com
Hemophilia: The Musical: breakingthroughhemophilia.com
My Beautiful Stutter: mybeautifulstutter.com/
Stop The Bleeding!: stbhemo.com
Teen Impact Awards: teenimpactawards.com
The Science Fair: thesciencefair.org
Natalie interviews attendees of NHF’s 71st Bleeding Disorders Conference, Amy & Debbie recap a mental health session from the conference, and we preview a brand new podcast series featuring an incredible community story from Vanessa Flora. Then, DISORDER: The Rare Disease Film Festival co-founder Daniel DeFabio joins Patrick to preview the 2019 festival and its films! All that, plus, safety updates from NHF & HFA, streaming recs from Mama Sue, and more on Episode 41 of The BloodStream Podcast.
Presenting Sponsor:
Takeda: http://bleedingdisorders.com
Segment Sponsor:
Genentech: https://www.youtube.com/challengeacceptedshow (Like Segment)
Safety News
Genentech Issues Statement on Hemlibra Particles; MASAC Responds (10/7)
NHF and HFA’s Joint Letter on Product Safety (10/1)
Interview Segment:
DISORDER: The Rare Disease Film Festival: https://www.rarediseasefilmfestival.com/
A Moment For Mental Health Segment:
Counseling
The Wingmen Foundation
Better Help
Support Groups
National Alliance On Mental Illness
Depression and Bipolar Support Alliance
Mama Sue’s Streaming Recs:
Diet Fiction
For The Birds
Downton Abbey (the movie!)
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Subscribe to and rate The Ask The Expert Podcast
Connect with BloodStream Media:
Find all of our bleeding disorders podcasts on BloodStreamMedia.com
Check out Believe Limited’s Other Work:
BloodFeed: bloodfeed.com
Bombardier Blood: bombardierblood.com
Hemophilia: The Musical: breakingthroughhemophilia.com
My Beautiful Stutter: mybeautifulstutter.com/
Stop The Bleeding!: stbhemo.com
Teen Impact Awards: teenimpactawards.com
The Science Fair: thesciencefair.org
NHF’s 71st Bleeding Disorders Conference (BDC) is just weeks away, the stress of back-to-school season is in full effect, and might Tai Chi be, “An Ancient Remedy for Modern Times” that we all need? Rick Starks says so! Nutrition consultant student Delisa O’Brien and Hong Kong-based singer/songwriter Kashy Keegan join the pod to talk about Sickle Cell Disease (SCD) and Charcot-Marie Tooth Disease (CMT), as September is an awareness month for both, and Spark Therapeutics Co-Founder & President Dr. Katherine High joins us to discuss her journey in gene therapy and the launch of TheScienceFair.org! Plus, A Moment for Mental Health with Debbie and streaming recommendations from Mama Sue. All that, and more, on Episode 40 of The BloodStream Podcast.
Presenting Sponsor:
Takeda: http://bleedingdisorders.com
Segment Sponsors:
Like Segment made possible by Genentech: https://www.youtube.com/challengeacceptedshow
Share Segment made possible by Sanofi-Genzyme: https://www.juneforjointhealth.org/
Like Segment:
How Stress Hits Women’s Brains Harder, from Prevention.com
Share Segment:
Rick Starks’ An Ancient Remedy for Modern Times
Comment Segment:
Sickle Cell Awareness Month
CMT Awareness Month
Kashy Keegan - The Best Is Yet To Come
A Moment For Mental Health Segment:
National Suicide Prevention Hotline: 800-273-TALK
Crisis Text Line: Text CONNECT to 741741
Trevor Hotline: 866-488-7386
American Foundation of Suicide Prevention: www.afsp.org
Mental Health Matters Too Resource Guide
Take a free of charge, private mental health screening here: https://www.mhanational.org/
Mama Sue’s Netflix Recs:
Parting Shots:
Believe @ NHF 2019: http://believeltd.com/nhf2019 + https://events.hemophilia.org/ehome/bleedingdisordersconference/program-at-a-glance/
Save One Life: https://saveonelife.net/
Subscribe and rate: The BloodStream Podcast on iTunes
Listen to the latest: Ask The Expert Podcast
Stop The Bleeding!: stbhemo.com
Teen Impact Awards: teenimpactawards.com
BloodFeed: www.bloodfeed.com
The Science Fair: thesciencefair.org
Bombardier Blood: bombardierblood.com
Connect with BloodStream Media:
Find all of our bleeding disorders podcasts on BloodStreamMedia.com
Subscribe to BloodStream:
iTunes: http://bit.ly/bloodstreamitunes
Stitcher: http://bit.ly/bloodstreamstitcher
LibSyn: http://bit.ly/bloodstreamlibsyn
SoundCloud: http://bit.ly/bloodstreamSC
TuneIn: http://bit.ly/bloodstreamtunein
Google Play: http://bit.ly/bloodstreamPlay
Spotify: http://spoti.fi/2nNPhui
Is gun control a healthcare issue? Why is CBD everywhere? What new assistive device did Patrick buy? We discuss it all, plus, Association for Healthcare Social Media Founder and President Dr. Austin Chiang joins to discuss his mission, Debbie de la Riva’s back to talk about National Suicide Prevention Month, and Mama Sue helps us wind down with her latest streaming recommendations. All that, plus a community share from Meredith Meyers- and so much more- on Episode 39 of The BloodStream Podcast.
Presenting Sponsor:
Takeda. Visit http://bleedingdisorders.com to learn more.
Segment Sponsors
“Like Segment” made possible by Genentech:
https://www.youtube.com/challengeacceptedshow
Subscribe and rate The BloodStream Podcast in Apple Podcasts
Listen to latest Ask The Expert Podcast
Show Notes
Housekeeping
BloodStream Media: bloodstreammedia.com
Stop The Bleeding!: stbhemo.com
The Science Fair: thesciencefair.org
Like Segment
Share Segment
Meredith Meyers’s First of His Kind
Comment Segment
Is Gun Control A Health Care Issue?
A Moment For Mental Health Segment
National Suicide Prevention Hotline: 800-273-TALK
Crisis Text Line: Text CONNECT to 741741
Trevor Hotline: 866-488-7386
American Foundation of Suicide Prevention: www.afsp.org
Mental Health Matters Too Resource Guide
Interview Segment w/ Dr. Austin Chiang
Association for Healthcare Social Media
Mama Sue’s Netflix Recs
Parting Shots
Two women in Chicago are naming all the generic drugs
Connect with BloodStream Media
Find all of our bleeding disorders podcasts on BloodStreamMedia.com