We breakdown and react to a recent article on the role of child-abuse pediatricians and some of the dreadful outcomes that’ve come from the creation of this well-intended specialty. Then NHF board member and blood brother John Faria joins Patrick to discuss his role in the recently launched HemeWork program.
Presenting Sponsor: Takeda
Segment Sponsor: Genentech
Article: When the Misdiagnosis Is Child Abuse
HemeWork: Community Stories
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To the surprise of many, on August 19th the US Food and Drug Administration denied the first application for a one-time gene therapy for hemophilia A. Patrick and Amy process this major news then share soundbites from their conversations with doctors Valentino, Quon, Young, and Wang during #NHF2020's Science Fair about gene therapy, emicizumab, and novel therapies.
Presenting Sponsor: Takeda
Response to FDA's Actions: HFA StatementThe Science Fair is made possible by Spark Therapeutics
Bombardier Blood is now available worldwide! On release day, Patrick shares some "final thoughts" on the project, then turns the show over to Liz Manashil and Alrik Bursell's interview of him about the film for the Making Movies Is Hard podcast!
Presenting Sponsor: Takeda
Bombardier Blood: Available now!
Bombardier Blood Q&A w/ Anthony Rapp: More info!
Making Movies Is Hard w/ Liz Manashil and Alrik Bursell: Subscribe!
Patrick, Natalie, and Amy circle up to share highlights and personal takeaways from the National Hemophilia Foundation’s Virtual Bleeding Disorders Conference, which took place August 1st-8th via hemophilia.org. Listen in as the hosts recap some critical sessions, relive their favorite experiences, and share personal takeaways from #NHF2020!
Presenting Sponsor: Takeda
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